When Sean was born, doctors predicted he would not survive more than 24 hours because of a rare bone disorder, Osteogenesis Imperfecta, that stunted his growth and caused his bones to be extremely fragile. Despite the challenges he faced, he’s taken a stand for a quality of life that has reached millions of people around the world including Sir Richard Branson, President Clinton, and his Holiness the 14th Dalai Lama.